“We just heard about this other kid who’s 15, a year older than her. He’s got hypoplastic left heart, and he’s the only one who has survived to be that old. And when he found out about Jeni he was just so excited that there was somebody else that had survived. When they were doing hypoplastic left hearts in the beginning it was unusual to live. She was only like the third, or something, in the world. I thought any kind of chance would be better than her dying. So it didn’t matter what the survival rate was.
“I think it was easier when she was a kid. She didn’t know what the consequences were or what life held for her. And now she’s thinking more and more, ‘Will I be an adult, will I have kids?’ As a teenager, she’s wondering what her life will be like. All this stuff is coming out now.”
– Jill, mother
((L) Jill brushes Jeni’s teeth after pacemaker implantation surgery | (R) Jeni waiting to be discharged from the hospital)