“He doesn’t really talk about his condition. It’s not that important. I’ve noticed him being a little more self-conscious now that he’s a teenager. But it never bothered him before. I remember at the swimming pool he never wore a T-shirt ever. Never. And there was some other boy who had surgery, he always wore a T-shirt. And the father came up and said that it was just so cool that Scott wasn’t bothered by it at all.
“He tries to do everything and it’s very difficult to talk him out of things. But that’s his personality. He wants to do everything, that’s just the way he is. He takes on too much. I still worry more about the little things, but I don’t worry too much about his health right now, since he’s doing great. All the other surgeries came upon us so quickly. But in between I was always really optimistic. It’s hard to let go completely. A parent always worries. I don’t know that I’m different from any of the other mothers. I just had a little more to worry about.”